In the 1990s the new science of gene technology was proving to give answers to many previously unanswered questions regarding hereditary diseases. One of these answers was the discovery of the genes BRCA1/2, mutations on which increase the likelihood for breast and ovarian cancer in women to up to 85%. There was a race among scientists to first identify the gene (originally it was thought to be just one) and sequence it, and in 1994 University of Utah filed a claim for the first patent in the name of Myriad Genetics, which has since held a practical monopoly on research into both genes and the testing for mutations on them. The patents cover not just specific mutations or methodologies of testing for these, but the entire genes, involving any use and research related to them. They were contested early on for a variety of reasons, relating both to the ethics of patenting human genome and to whether it is even reasonable to do so from a legal point of view. In 2009, the American Civil Liberties Union (ACLU) with others filed a suit against the United States Patent and Trademark Office (USPTO) and Myriad Genetics in order to have the patents declared invalid. They won the first case, which was since appealed by Myriad. The case was brought before the United States Supreme Court early in 2013. The gene patents were also contested in Europe for reasons related both to the effectiveness of the Myriad tests and to the ethics of patenting human genome. This text will focus on these ethics, specifically relating to treating parts of the human body as property, and how this in the BRCA case disproportionately affects women.
Where the silence gives room to the thoughts that would otherwise drown in the noise of outside life
Showing posts with label people as property. Show all posts
Showing posts with label people as property. Show all posts
08 July 2013
The Patenting of Human Genome as an Issue of Women's Right to Health
Labels:
BRCA,
cancer,
English,
family,
genetics,
health,
healthcare,
human rights,
intellectual property,
international law,
law,
people as property,
science,
society,
USA
05 May 2013
Run for Your Life – before you lose it
Today a little run-through
of jealousy in popular culture. Or rather, in a few selected songs.
Not your old-style, relatively innocent ”my stomach hurts when
Bob/ette is talking to someone who's not me” jealousy, but when it
veers into violence and potential death. Jumping from songs to dead
people might seem like a long shot, but at least in some cases it
isn't that much of a leap.
Labels:
Beatles,
domestic violence,
English,
gender relations,
love,
male sexuality,
monogamy,
music,
people as property,
power,
relationships,
sexuality,
society,
songs,
violence
17 February 2013
Jolene, If He Wants to Go, You May Keep My Man
When
talking intimate relationships, all sorts of stuff is relevant; who,
what, how, when, is it even the right person? And much prose and
music has been made about just about every aspect of all of this mess
(no, really, it can be a mess, I'm sure you agree). One thing to
worry about, or that people worry about whether they ought to or not,
is: will that special someone stick around? Will somebody come and
whisk away your someone?
Labels:
autonomy,
Beatles,
children's songs,
English,
gender relations,
Jolene,
love,
male sexuality,
monogamy,
music,
patronising,
people as property,
relationships,
sex,
sexuality,
songs
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